Showing posts with label Life. Show all posts
Showing posts with label Life. Show all posts

Thursday, February 5, 2015

What would you do?

There is a question I ask friends who come to me with existential questions about their life.

"If money was no object, what would you wake up every day and do?"

Today I got a rejection letter for a job I applied for. It actually was my first job rejection and for that I am grateful. A part of me knew I may not get it, but there was a sting at a different level in the e-mail. It hurt me because I almost threw away everything I've been building.

My job as an in-home support worker can be tough at times, but it is one of the most rewarding things I have ever been a part of. During the summer, I also have the privilege to teach a film camp with members of the autism community. Things are going very well for me with performing and, weather permitting, I have a few gigs already booked for this year.

I applied to the job on a whim. The pay wasn't the best and it would have meant I would have needed to give up some of the travel and conferences already planned for this year. It's also not a job I would have stayed in for the rest of my life.

After getting the rejection email, I had a conference call about the online classes, arranged another conference call for an upcoming writing project, and finished a posting for a class. Soon, I'll work on playing with my levi-wand and filming myself for a short fan video.

It takes some perspective to remember I'm not interested in the 9-5 life. A life of adventure is more my speed. Next month is my birthday and I am gifting myself a tattoo which is a very fitting reminder. It's the phrase Hannibal said while crossing the Alps and it's also a quote on my business cards.

Aut inveniam viam aut faciam
I will find a way or make one.

Thursday, September 4, 2014

Show me and Grow Me

 I've already begun to think about a presentation I am doing at OCALI this year. It is a poster presentation (SPOILERS: It'll be interactive!!!) about How to Grow A Healthy Person. I made it not only Autism-centric because one thing I've learned is what works for one person can work for many.

I have a plant named Henrietta, I've mentioned her before. Some people may also know I've been growing lots of things this summer, or trying to at least, with mixed results. Being the Garden Witch and going traveling leaves (hehe) my babies anxious. Coming back in August, I had to do some serious Tender Leafy Care to see what could be saved. I grew a potato! For those who don't think that is impressive, my relatives struggled with growing potatoes  in Ireland a while ago and they were much better at gardening than I am.

My proudest thing right now is of this, my Lemon Balm. I only really identified it yesterday because it was not labeled. It was not labeled because when I first planted it, it did not look like things were going to make it. Growing thriving plants from seeds is difficult for even experienced gardeners at times and this is seriously the first time I have tried to grow things. As a child, my mother would have a section of the garden which was mine and I know if she had not watered it it would have been mulch. 

You can never see how tall our plants will grow until they are finished growing. We never know how mighty we will grow until we are given the chance to fully thrive. If I had given up on this little cutie, I never would have seen him bloom. It just wasn't his time to spring up until I got back. He waited for me and knew I needed to see him. We needed each other.

In some cultures, Lemon Balm represents the balance of Yin and Yang energies. We cannot fully have the light if we do not know the darkness. From the little seed I planted, he is almost all that remains of the original 200+ seedlings in April. He is the balance I needed to show me I have done good. I have brought life into this world. Hearing so much negativity, anger, hostility, gossip and pain causes me to falter. It would make anyone question what is real and what are just hushed stories people tell each other.

I know what is real.
This lemon balm is real.




It takes time.

Monday, August 18, 2014

I want to be social... but I'm not really social all the time

This weekend I went to preform at an amazing festival. It was filled with amazing and friendly people. I love these types of events, but after my Month of Autism (as July of this year shall now be known as) I was getting very quickly overwhelmed with people.

At the Autism events I went to, going up to someone and saying "nice bracelet" or exchanging random quotes from obscure movies can establish a friendship. When people were nice to my face,  I had no reason to believe they were not being nice behind my back. My hearing senses can get turned up and I heard people making snap judgements about me and my friends. Not cool.

Since I wanted to be social and had to take responsibility to pull myself out of a funk, I made up my mind to have fun. In my little cave of Brigid (also known as my tent) I regrouped, regulated, and headed out to socialize.

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I've talked about spinning, or flow arts, quite a bit lately and I don't know if I've communicated it clearly. By finding spinning, I've found a part of myself. Even surrounded by people who I don't know, it was comforting to be known as "The Fire-spinner". I can spin things and relax in a way I've never done before. I had the opportunity to meet amazing fire spinners this weekend who elevate the art to a level I wish to one day achieve, and they complimented me on my spinning.

After a very stressful social encounter last month with someone who retracted a huge Autism leadership opportunity because I don't fit in with their value system, I must admit I felt crushed. It caused me to doubt myself, my values, and my mission in life.

My mission is to spread happiness.

Spending some time surrounded by loving and friendly people, I realized I need to remember to love myself. The path I've walked is one that could only have been walked by me. It takes a lot out of me sometimes just to be me, but I'm proud of everything I've done. I can be social doing the things I love as long as I don't let the negative people affect me. There will always be negative people around me, I just need to shrug it off.

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When people ask me how their child or adult can be social, I often want to talk directly to the person and not about them. All people have their own comfort bubble and for some people we like to talk about our special interests. My special interests are movies, autism, animals, and flow arts. I've talked to people who like dirt, cars, architecture, and very many different things.

Being social can sometimes be a challenge. It can be scary, intimidating, and very anxious. However, the rewards far outweigh the stress. I met a lot of amazing people and I am really excited to get to know my new friends even better and share our successes with each other.

Wednesday, May 28, 2014

From the Whispers

I'll readily admit I've been missing online most of this month. It has both been a conscious effort and an unintentional consequence of anxiety.

As far as things go, I will say it has not been a slow month in any respect for me. I've gotten so big news and am proud to share it with all you lovely people. I've been accepted to speak at TWO (2) separate conferences this summer into fall. I'll be at AACC (Association for Autistic Community Conference) and at OCALICON (Ohio Center for Low Incidence and Autism Conference).

I've also been busy spinning fire and getting back into the swing of grad school. I'll be bringing back a lot more to this blog (including some guest bloggers) in future weeks as I'll be getting ready for an epic summer.

For more information on my AACC presentation, check out the link below!
http://autisticcommunity.org/2014/05/04/aacc-2014-presenter-list/

Wednesday, February 26, 2014

The Grieving Archeologist

This is the hardest week of the year for me. This is the week where as hard as I try, the creeping depression looms its head. Depression zaps my energy and steals time I would rather be spending working or hanging out with people. This also bites because this week always is always before my birthday and prevents me from looking forward to it. On March 2nd 2005, I sustained a Traumatic Brain Injury that stole my life from me. Not only did I have months of occupational therapy, physical therapy, medical issues, and no support from my school; I lost my memories.

Yes. Everything in my life before March 2nd in 2005 is now lumped as the scattered images in my head. School years, friends, major life events are all blurred together with no real details and only vague shapes of space where things may fit.

I lost it all.

When things first happened, people thought I was exaggerating. Even now, people don't understand and can't wrap their heads around the idea. I looked the same, but there were things I didn't know or didn't know that I didn't know. Even know, I'm never going to know everything I've missed. I've spent the past few years relearning everyone other people learn in grade school about the world around them and I still have more to learn. It's not like there is a checklist I could go through for memories and see if things are there. Some memories I glimpse scattered in dreams and others take a random trigger to get a peek at what once was.

There sits in my room, wherever that may be in the world, a small box. In this box there are notes and letters and photographs. When my family had to leave our last house, we couldn't take everything. Most of my childhood drawings, photos, and childhood memories were left and destroyed in the house. In some ways it makes it easier to have my old life confined to the size of a shoebox.

This time of year I take out the box and try to look through things; searching for who I once was.

Like any good anthropologist, I look at the clues and try to make connections based on what is in-front of me and the resources at my disposal. I look at pictures of a little blonde girl playing with some friends and I don't know who they are or where the picture was taken. Guess can be made, but finding the answers of names or places only gives small details of the story of her life. Was she happy that day? Were these her close friends? Why was she there that day with those people? These are just some of the eternally unanswered questions about the life I use to have.

My accident came 8 days before my 16th birthday and my birthday was spent in a full body CAT scan. When other people celebrate the life they have had on their birthday, I spent mine in unimaginable pain. This year I turn 25 years old, a quarter of a century, and I only remember the last 9 years. People tell me how young I am and my only response to them is "you have no idea."

It is true, I still grieve for the life I'll never remember. For years after my injury, I spent my time just trying to survive while hiding the emotional and physical pain I felt. It was only after asking those people who knew me both before and after the injury did I realize what was truly lost. My middle-school and high-school career was filled with anxiety and being bullied. I lived in a home more like a warzone where I was hostage to an abuser others denied existed. My self-esteem was crushed and I felt hopeless in my life many days.

 I can't leave this post on a negative note, lest you think I dislike the life I have now.

I've been told after my injury, I became "Brigid" again. I once again became the strong blonde girl who didn't let bullies hurt others, who cares about people she may never meet again, who stands up for what she believes in even if she stand alone, and I've found the happiness years of abuse from many people took away from me. It's true I have remembered some of the worst things that happened to me, but it never feels like it was me living those moments. It was all just a girl who looked like me and shared my name. I've become stronger because I the things I've had to live through have helped make me this way when I didn't let them break me.

This is the hardest post I've written and tears have been streaming down my face the whole time. Part of the reason I write so much now is an ingrown fear I'll forget. I want a record of my life somewhere because I am missing 16 years of records. Thank you all for joining me on this journey and I am very hopeful of what is next for me. Not everyone gets a second chance to lead their life and I work hard to never feel like I'm wasting a second.

I'm Brigid 2.0: the new and improved version. (Now with 2 Birthday Cakes)