In many cultures and for all of history, storytellers have shared their talents by entertaining and educating the masses. Brigid is a woman with many different stories and a unique perspective on the world. She's Autistic and a redhead, but only one of those is a recent development. Follow her blog to hear her stories, learn something new, or forget about your worries for a few minutes.
Saturday, October 12, 2013
Artistic Love
My strongest relationship is one I've only recently been able to rededicate my time to and I couldn't be happier.
I've been in a relationship with preforming for, well, a long time. I'd celebrate my anniversary, but It's been an on/off affair for a bit so time is relative.
It started out being the tall kid who had to make the waves for the pirate ships to sail on. That was actually after I memorized everyone's lines in my kindergarten Christmas pageant. My preparation was in part because if everyone suddenly got sick and could not preform, I could totally pull off the entire show! Yes, I was that child.
For the past two years I've had the amazing pleasure of being a part of an award winning Vaudeville Troupe: The Dark Follies. They help to nurture my creativity and push me to be the best performer I can be. No wacky idea is too crazy for them, as proof by my lovely Chivalrous Shark. Last night was the fifth anniversary show and tonight is the spooky Darker Follies.
I'm madly in love with preforming and specifically seeing something creative come to life. I've seen sculptures, dances, and music pieces take shape in ways completely unexpected.
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Life is a lot like art is so many ways. We think we know what we want the finished picture to look like, but the process is not entirely in our control. We can get the right canvas, set up the paint, and then a cat comes running by knocking everything over a making blue paw prints over everything! We can choose to go with it or we can fight against the universe. Now, it is totally appropriate to take a moment to cry in a corner if you need to before moving on. That's all part of the creative process and it's unique to every person.
Now if you'll excuse me, I need to go dress up and play with a glow staff.
Check out The Dark Follies because they are amazing!
Saturday, October 5, 2013
Green Eyed Purple People Eater
An Emotion is (usually) a reaction to a specific event. We tie our emotions to things the same way we tether balloons to the wrists of children so they do not become lost. For those on the Autism Spectrum, the amygdala in our brain processes emotions differently. From a structural point of view our brain is hardwired to deal with emotions differently.
Emotional competency involves understanding the physical effect our emotions have on our body and what we can do to understand our, as well as others, emotions. Cognitive behavioral therapies are sometimes used to help teach children about emotions using stories to help illustrate the points. It's not that we are trying to be oblivious, we honestly don't understand a lot of the emotions other people spend so much time focusing on. For many of us, it is easier to temporarily ignore the uncomfortable emotion and try to understand it at a later point when we can analyse it.
For my graduate class I chose to write a paper on Emotional Regulation and will be immersing myself in the topic for the next few months. So I get to pour over dozens of scientific articles about the study of emotions, how we react to emotions, and how we can have a healthier relationship with our emotions. I am specifically focusing on the Autism community, but again this is one of those important things EVERYONE could benefit from learning more about. Needless to say, I'm totally psyched to be able to dork out for hours on end researching and pouring over all the information.
This brings me to my biggest confusion.
Almost all emotions serve a purpose. Happiness to cherish the moments of bliss. Sadness reminds us of our loss in many different forms. Anger and the process of anger is a very undervalued emotion which causes more problems than you can shake a stick at.
Jealously is... different.
In this day and age, we combine the terms envy and jealousy. This further complicates the matter because envy is a defined emotion and jealousy is not. Seriously, Scientists cannot agree on any one definition of jealousy. Jealousy is a complex combination of emotions like anger, insecurities, and disgust amongst many other emotions. The complex and intangible nature of jealousy hurts my head.
Some scientists separate envy as wanting what another has and jealousy as a fear of losing what you have. Envy does have the power to motivate people if they channel their envy to a productive use. If you are envious of a fit person enjoying life and that motivates you to become more fit, that is a positive use of envy. Jealousy has destructive power rooted in a protection or hoarding mentality of wanting to keep your shinies all to yourself.
As a Autistic person, I download emotions in my own special way. I do my best to understand my own emotions and I have actively worked to trying to understand other people's emotions. Body language, facial expressions, word choices, and many other things are affected by our emotions. It wasn't until I started to try to figure out jealousy that I became aware of the global lack of understanding of Jealousy.
We paint pictures, write songs, and do our best to make sense of a senseless emotion. Some scientists think there may be an evolutionary root to jealousy connected with the desire to pass on our genetics. I think jealousy is a word we assign to emotions when we don't want to deal with the real issue. Abandonment, insecurities, heartache, and every other painful emotions that makes us feel worthless. Jealousy is rooted in the fear we are not worthy.
But we are worth it.
You are worth good things happening to you. You deserve the best and can work towards being your own personal best. Just because someone else has a bright light shining, it does not take away the strength of your light. Your light is still bright and brighter because you know how things were before the light. Don't worry, the light does not go away. Your light never has to go away unless you want it to.
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“Jealousy is a tiger that tears not only its prey but also its own raging heart"- Unknown
Saturday, September 28, 2013
Silence
I need people to understand I don't know what I'm doing 100% of the time, but I do the best I can with what information I have.
I need time to be a clueless 24 year old before I become a clueless 25 year old.
Saturday, September 21, 2013
Goldfish in Boxes
Little boxes on the hillside,
Little boxes made of ticky tacky,
Little boxes on the hillside,
Little boxes all the same.
"Little Boxes"- Malvina Reynolds
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One of the main difficulties of having an invisible disability is it is invisible. Sometimes my coping strategies make it appear as if I'm just like everyone else so people don't always understand why I struggle with the "simple" things. These same people don't realize the need to check every time I leave the house to make sure pants were not forgotten when rushing out the door. Little things some people do without thinking confuse me and vice versa.
The biggest issue I personally struggle with is relationships. Relationships are all based on communication in some way, shape, or form. Having a disability rooted in social difficulties obviously can be a big challenge. It can cause strain on my relationships because people don't always understand me.
Letting people see my flaws and challenges takes a lot of trust on my part. I wear my heart on my sleeve and being so kind can hurt me as much as help me. It is all too common for people to use and abuse people like me since I'm such a caring person. Manipulation does not make sense to me and I am always the last to know if someone is not being straightforward with me or worse, if the person is dangerous.
The way the world looks to me helps to compound my relationship issues. Why wouldn't people be nice to each other? What harm can come from having conversations with people? If I have the power to help someone by doing something as small as listening to their problems, why wouldn't I?! Love, happiness, and compassion are traits spread by giving them to others.
That being said, I'm not sure when people care about me. This is not a "poor Brigid" moment, it's just the truth. It is very confusing to think people will be there for me the way I am there for them. As empathic as Autistic people are, unless people bluntly tell us how they feel we don't understand. Unspoken emotions and unsaid promises are never fully received. Like a living game of telephone, the message get muddled.
It was a joke for a long time about having an accidental ex-boyfriend because I never realized we were dating until we broke up. My friend Stephen Shore tells the story of accidentally dating the woman who is now his wife. How can this happen? Well as someone who has dated another friend for an undetermined period of time before we decided to take a step back, it's REALLY easy for me to not understand the nature of relationships.
Why?
I've mentioned schemas before or basically having a blueprint of how things are supposed to look like. As a person who needs those blueprints to make sense of the world, there are not always the best design plans floating around. Movies and books promote conflict in relationships to move things along or bring people closer together. I thought there were right and wrong ways to date a person or to be someone's BFF (Best Friend Forever). As someone who also has brain damage and does not actively remember the majority of the first 16 years of my life, I'm missing a LOT of the blueprints even other Autistic people have learned.
The hard/easy truth I've learned over the past year is no one has any idea what relationships are supposed to look like. Everyone is stumbling around looking for the magical blueprints that don't exist to have the perfect relationship. Millions of magazines are sold every year telling people how to be a good friend, girlfriend, boyfriend, or a good person who people want to be friends with. Most of this information is so conflicting it can be comical at times, but distressing for the same reason: there is not a "right" way.
So I'm working now, and will continue, to try to figure out what a friend looks like to me. We teach Autistic kids how to treat other people so they can have friends, but no one teaches us how friends should treat us. We stumble sometimes in the world and get hurt because we don't understand why people would want to take advantage of us or lie to us.
Growing up, I heard the story a goldfish could only grow as big as its environment. My brain translated this into a picture of different sized containers contained fish of corresponding sizes. Somewhere in the translation or transcription of my brain, I thought relationships worked the same way. As much as I'd like to put relationships into nice little boxes to organize things, they are wild things. Just like goldfish, relationships continue to grow as you grow. Some relationships are only for a short time and other cases you find friends for life. I'm still working on understanding what relationships are supposed to look like and I've tried my best to not hurt others by my lack of understanding. In many ways, I'm just a kid and doing the best I can to act like an adult. In more ways, I'm just like everyone else because we are all trying to do that.
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"The most common cause of stunting is a lack of understanding of a fish’s requirements resulting in a lack of appropriate care. A stunted fish is not a healthy fish."- It's Not Just a Fish Organization
Saturday, September 14, 2013
A world with less hate.
have confused me, endlessly.
Some take the bone from their mouth to feed the poor
while others make the bones shiver with their cold stares.
I can't be alone
seeing the masses gather without a home
hurts me so much.
By isolating ourselves
and putting our hearts on the shelves,
we forget our membership to the world.
Labels and foibles and microwave dinners keep us apart.
Forget my origin and my stats
I'm just human,
or at least I'll pass.
We strike out to others to avoid the blows,
when all anyone really wants is a comfort everyone knows.
To feel accepted and loved for who we really are
that destination should not have to be this #$%ing far.
Why must we hurt others to make our own hurt not show?
The math doesn't add up; only down below.
I think people need to throwout the precal algebra calcu-what's it
and remember what we learned back before we were told to learn.
Be happy, be loving, and that will grow.
Stand up tall and smile to someone you don't know.
Love doesn't need math because exponents are too small,
too small to fully describe the power in us all.
So let the love shine brighter than the sun
so maybe there will be less hatred for everyone.
Sunday, September 8, 2013
Busy B(rigid)
"I'm busy."
No really, I'm busy.
It's not me trying to be rude, but my own health and sanity (what's left) comes first.
Being skilled at multitasking has created some problems when the tasks begin to multiply. Even though people in my life may forget, I am disabled. Executive functioning skills refer to the ability to plan and organize things. I don't have good executive functioning skills and I never have. I've shaped my life to compensate for my lack of that skill set.
As frequent readers of my blog know, big things are changing in my life. So many changes that what few coping strategies I have have fallen apart. I've gotten overwhelmed lately with all the things going on in my life and how sudden things have begun to change. There have not been enough hours in the day to do everything I want to do and sometimes not everything I need to do.
Just for giggles, I'm going to highlight everything I've been doing for the past couple of weeks. I'm currently a full-time grad student working on the first classes towards my masters. I'm also still working full-time as the lead staff for the next few weeks as we transition people to take my place. I'm also working part time (right now) as a TA for an online class geared towards Direct Support Professionals working with Autistic individuals. I also have responsibilities in my Vaudeville troupe, as well as needing to rehearse on a daily basis. I've also begun doing freelance writing and working on multiple book projects.
So yeah, I'm busy
Now I can function under extreme pressure. The college I went to was a one-course-at-a-time type. That means you are in class every weekday from about 9am to 3pm with a two hour lunch break. My free time would normally be filled with work, homework, other leadership responsibilities, and my social life. Part of the reason I have so much fun relaxing with nerf guns or dressed like a zombie is because I work so hard.
But even I have a breaking point.
Now my breaking point is different from other people's breaking point. Other people will give up some responsibilities before they reach their breaking point. For me, my body will give up before my mind admits defeat. It is only when faced with my body failing from the stress and pressure, do I finally give in.
My point came this week after almost a month solid of everything. Anxiety would wake me up from my sleep. Naps were frequent and about 2 hours in the middle of the day. I kept forgetting to eat at regular times so my tummy started to hurt randomly during the day. I wasn't happy with what I was doing.
So I changed.
I recharged this week and said good bye to my full-time job, again. My fridge is stocked with healthy food and some premade meals to prevent grabbing junk food on the fly. Laundry and chores are done (well except for the clean laundry next to my bed-nest). Sleep was my best friend this weekend and I socialized with other friends, but only in small amounts. Also the pile of unopened mail was opened after being unearthed from beneath the fruit bowl.
I'm not like other people. My average days could send most people into a meltdown. I've always liked to be busy and am a failure at pacing myself. I give 100% to everything in my life. Busy is not a temporary thing for me: Busy is a state of mind. Constantly moving, constantly thinking, and refusing to let life pass me by: that's busy.
Busy is not a negative thing, either. Being busy makes people realize what is important to their lives. I choose to be busy with things that make me happy. My busy-ness has a positive impact on dozens of lives, when things don't get too overwhelming. Being busy can be a great motivation for change. If you were able to be in control of every hour of you day, who wouldn't want that? Life is busy, so get busy with life!
Wednesday, August 28, 2013
Timey-Whimey, Moony-Swoony
In the history of human existence, we have looked to measure the intangible. We have measurements for temperature, stress, and pain. The most interesting of these intangible phenomenon is time. Time is such an important part of our lives and we plan our lives around time.
When people first tried to quantify time, they looked to the stars. The phases of the moon would change as the sun rose and set. People began to organize their lives around the moons, which became seasons. Each season brings a new blessing and new gifts. Time continues to move forward and the moon continues to move as well.
Sometimes, anytime, and timeless; time is so ingrained into our lives we don't always realize it. In some moments, time stands still and other moments time flies. People get hyper focused on the 'right time' to do certain things, only too late do some acknowledge there is no 'right time'. Time can be very subjective and time is different for every person.
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In the past few months time has had a different meaning to me. I've enjoyed my summertime, but I've been restless. I'm a person who needs to be doing things because I can't be average. I wish I was happy to work a 9-5 job, have date night one a week, and be 'average'. Average has never been my forte so the lull of life I ended up in earlier this year did not make me be my personal best.
Change has been in the air for awhile but things really started to take off for me at the summer solstice. The summer solstice is the longest day of the year and marks the middle of the year. After the solstice the nights get longer and people begin to get ready for harvest/fall/autumn. Ever since the summer solstice, my life has grown at an exponential level.
Love, career, health, and happiness has been abundance in my life since summer began. Things have been going really wonderfully, but it has not been all on my terms. I've prided myself on living life my own way and I haven't been able to fully do that. Months ago I made the huge change to move to Portland instead of Chicago and part of the reason was to start a life here. Now, my life gets to begin the next stage.
Starting in the middle of October, I'll be leaving my current full time job. My reasons are very simple and can be boiled down to one statement; it's time. Things have been growing around me and opportunities to support myself without my current job have come to me. Through hard work and networking, things have fit into the puzzle of my life. I'm in a position now to fully go for my dreams and I'm confident in my abilities to help me on my way.
This is not the end in any way, but instead an amazing beginning. This has been THE most emotionally intense decision of my life because the people I work with, my peers, are the reason I've stayed in my job for the past year and a half. They have taught me more than I've taught them and I'll be forever in their debt for having them in my life.
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Moons have names depending on when they occur and we take some of these names from the Algonquin tribes. These names embody the time of when the moon is full. The Harvest moon is closest to September and was the time when people would harvest their summer crops before winter. October's full moon is sometimes known as the Travel moon. My last day of work is on the Travel moon. My future is wide open for travel and adventure. I'm young, but I've never been one to wait forever. Time moves slowly for some and quicker for others. It's not the amount of time that we have that is a measure of our lives, it's what we do with the time we are given.
This is my time.